Thanks to all who were able to make it this past weekend to our Mito Tailgate Party…we thought it was a great success. Four families were able to meet, share stories and insights, and mingle together for a fun time. We discussed adding a fundraiser component the next time we meet. We will keep you all informed. We know that there were many families who wanted to attend this time but were not able. We hope to get together again next spring.
We were able to interview the families in attendance. I will be working this week (probably near the end of the week) on putting together a “commercial” for mitochondrial disease to upload to YouTube and share with everyone. Please….If any of you can send some pics of your children with mito (about 4-5), I can add some of those to the video as well.
Don’t forget that this is Mitochondrial Disease Awareness Week….try to educate as many people as you can. The more people know, the more they want to help…direct them to UMDF.org for more info and to make donations in your child’s honor.
The Rioux family is working to get Jack Black’s PSA on the air at one of the local TV stations….please let us know how that turns out.
Thanks!
Mandy Poche
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