UMDF would like to schedule grand rounds in a hospital in the Baton Rouge and/or New Orleans Area. We have a sponsor that will cover the travel expense for an expert in mitochondrial disease to present grand rounds. In addition to grand rounds we usually schedule a meeting for patients and families as well. Unfortunately we have not yet been able to locate a hospital interested in having them speak. The speaker is usually Dr. Bruce Cohen, but at times we have used other experts as well.
Sometimes it helps to have a local contact that will help support the program and connect us with the right contact at the hospital. This can be a physician or other healthcare professional in your area that would help “open the door.” Once we “get our foot in the door” Janet in our office will follow up with them for all the arrangements.
Do you know of anyone that may be able to help? Please let me know if you need additional information.
Yours toward a cure,
Melinda O'Toole
Membership Services
The United Mitochondrial Disease Foundation8085 Saltsburg Rd. Suite 201
Pittsburgh PA 15239
Toll Free;1-888-317-UMDF
FAX: 412-793-6477
Membership Services
The United Mitochondrial Disease Foundation
Toll Free;1-888-317-UMDF
FAX: 412-793-6477
The only doctor I know of in New Orleans is Dr. Niyazov at Oschner, he is a geneticist who pointed us in the direction of Mito for our son Tucker.
ReplyDeleteI think on the UMDF webpage there is a doctor listed at Tulane University medical school, but I have never met with that doctor.
Good luck, please keep us all updated!
Thanks,
Leigh
Hi, My son is a patient of Dr. Marble(Genetics) at Childrens hospital in Nola. He is also a Proff. at LSU Health Science. We also see a GI and Psychiatrist at Tulane. I'd be happy to ask for their help. All of these Doctor's have lots of Med students following them; it seems like they would be interested. thanks,gigi
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